Karen Donelan, PhD
Stuart H Altman Professor at The Heller School for Social Policy and Mgmt, Brandeis University
Dr. Donelan is a prominent survey and team scientist who has conducted numerous national and international surveys of the experiences of patients and health professionals in health care systems, nationally and locally. At Mass General, she is the convener of MGH Health Policy Rounds, she leads the Survey Research and Implementation Unit for the Division of Clinical Research and is a member of the MGH/MGPO Diversity Committee.
Recognized for her skill in designing surveys to measure the experiences of diverse professional and patient/consumer populations, Dr. Donelan’s current and recent national projects include the health workforce changes needed to improve care for frail older adults, assessments of care management programs, evaluation of innovations in payment for dually eligible Medicare and Medicaid beneficiaries, understanding insurance coverage for cancer survivors, and a test of a virtual clinic to improve evidence-based care for people with Down Syndrome. She is interested in evaluating new forms of human and technology support for diverse populations trying to access and navigate health systems.
Dr. Donelan has led primary research efforts at Mass. General Hospital to measure diversity culture from patient and workforce perspectives, assuring more robust inclusion of patients with disability, limited English proficiency and racial, ethnic and gender minorities. She has been a mentor to several clinician researchers on early stage career projects. She was a member of a National Academy of Medicine Committee to evaluate progress on the 2010 Future of Nursing report.
Dr. Donelan joined the MIHPC faculty in 2003, following more than a decade at the Harvard School of Public Health as founding Managing Director of the Harvard Opinion Research Program, and 3 years as Co-Founder and Senior Vice President of a venture-financed company providing assistance to patients and families confronting complex and critical illnesses. She has received considerable external support for her survey research, including the Patient Centered Outcome Research Institute, the Gordon and Betty Moore Foundation, the American Cancer Society, the Commonwealth Fund, Robert Wood Johnson Foundation, Henry J. Kaiser Family Foundation and others. She has published extensively in major medical, nursing, and health policy journals, and is a peer reviewer for multiple journals. She is a member of Academy Health and the American Association of Public Opinion Research.
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Selected Publications
Jimenez, Rachel B.; Johnson, Andrew E.; Horick, Nora K.; Hlubocky, Fay J.; Lei, Yvonne; Matsen, Cindy B.; Mayer, Erica L.; Collyar, Deborah E.; LeBlanc, Thomas W.; Donelan, Karen; Mello, Michelle M.; Peppercorn, Jeffrey M.
Do you mind if I record?: Perceptions and practice regarding patient requests to record clinic visits in oncology. Journal Article
In: Cancer, 2021, ISSN: 1097-0142, ().
@article{Jimenez2021,
title = {Do you mind if I record?: Perceptions and practice regarding patient requests to record clinic visits in oncology.},
author = {Rachel B. Jimenez and Andrew E. Johnson and Nora K. Horick and Fay J. Hlubocky and Yvonne Lei and Cindy B. Matsen and Erica L. Mayer and Deborah E. Collyar and Thomas W. LeBlanc and Karen Donelan and Michelle M. Mello and Jeffrey M. Peppercorn},
url = {https://pubmed.ncbi.nlm.nih.gov/34633655/},
doi = {10.1002/cncr.33910},
issn = {1097-0142},
year = {2021},
date = {2021-10-01},
journal = {Cancer},
abstract = {Audio recordings of oncology clinic discussions can help patients retain and understand information about their disease and treatment decisions. Access to this tool relies on acceptance of recordings by oncologists. This is the first study to evaluate experience and attitudes of oncologists toward patients recording clinic visits. Medical, radiation, and surgical oncologists from 5 US cancer centers and community affiliates were surveyed to evaluate clinicians' experience, beliefs, and practices regarding patient-initiated recordings. Among 360 oncologists (69% response rate), virtually all (93%) have experienced patients seeking to record visits. Although 75% are comfortable with recording, 25% are uncomfortable and 56% report concerns ranging from less thorough discussions to legal liability. Most (85%) always agree when patients ask to record, but 15% never or selectively allow recording. Although 51% believe recording is positive for the patient-physician relationship, a sizable minority report that it can lead to less detailed conversations (28%) or avoidance of difficult topics, including prognosis (33%). Views did not vary based on subspecialty, practice setting, or geographic region, but older age and years in practice were associated with more positive views of recording. The majority of clinicians (72%) desire institutional policies to govern guidelines about recordings. Most oncologists are comfortable with patient requests to record visits, but a sizable minority remain uncomfortable, and access to recording varies solely on physician preference. This difference in care delivery may benefit from institutional policies that promote access while addressing legitimate physician concerns over privacy and appropriate use of recordings.},
keywords = {},
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Audio recordings of oncology clinic discussions can help patients retain and understand information about their disease and treatment decisions. Access to this tool relies on acceptance of recordings by oncologists. This is the first study to evaluate experience and attitudes of oncologists toward patients recording clinic visits. Medical, radiation, and surgical oncologists from 5 US cancer centers and community affiliates were surveyed to evaluate clinicians' experience, beliefs, and practices regarding patient-initiated recordings. Among 360 oncologists (69% response rate), virtually all (93%) have experienced patients seeking to record visits. Although 75% are comfortable with recording, 25% are uncomfortable and 56% report concerns ranging from less thorough discussions to legal liability. Most (85%) always agree when patients ask to record, but 15% never or selectively allow recording. Although 51% believe recording is positive for the patient-physician relationship, a sizable minority report that it can lead to less detailed conversations (28%) or avoidance of difficult topics, including prognosis (33%). Views did not vary based on subspecialty, practice setting, or geographic region, but older age and years in practice were associated with more positive views of recording. The majority of clinicians (72%) desire institutional policies to govern guidelines about recordings. Most oncologists are comfortable with patient requests to record visits, but a sizable minority remain uncomfortable, and access to recording varies solely on physician preference. This difference in care delivery may benefit from institutional policies that promote access while addressing legitimate physician concerns over privacy and appropriate use of recordings.
Auerbach, David I.; Levy, Douglas E.; Maramaldi, Peter; Dittus, Robert S.; Spetz, Joanne; Buerhaus, Peter I.; Donelan, Karen
Optimal Staffing Models To Care For Frail Older Adults In Primary Care And Geriatrics Practices In The US. Journal Article
In: Health affairs (Project Hope), vol. 40, no. 9, pp. 1368–1376, 2021, ISSN: 1544-5208, ().
@article{Auerbach2021,
title = {Optimal Staffing Models To Care For Frail Older Adults In Primary Care And Geriatrics Practices In The US.},
author = {David I. Auerbach and Douglas E. Levy and Peter Maramaldi and Robert S. Dittus and Joanne Spetz and Peter I. Buerhaus and Karen Donelan},
url = {https://pubmed.ncbi.nlm.nih.gov/34495726/},
doi = {10.1377/hlthaff.2021.00401},
issn = {1544-5208},
year = {2021},
date = {2021-09-01},
urldate = {2021-09-01},
journal = {Health affairs (Project Hope)},
volume = {40},
number = {9},
pages = {1368--1376},
abstract = {Different staffing configurations in primary and geriatric care practices could have implications for how best to deliver services that are essential for a growing population of older adults. Using data from a 2018 survey of physicians (MDs) and nurse practitioners (NPs) working in primary and geriatric care, we assessed whether different configurations were associated with better or worse performance on a number of standard process measures indicative of comprehensive, high-quality primary care. Practices with a large concentration of MDs had the highest estimated labor costs. Practices high in NPs and physician assistants (PAs) were most common in states that grant full scope of practice to NPs. The high-NP/PA configuration was associated with a 17-percentage-point greater probability of facilitating patient visits and a 26-percentage-point greater probability of providing the full bundle of primary care services compared with the high-MD model. Team-based configurations had a 27.7-percentage-point greater probability of providing the full bundle of primary care services. The complex needs of older adults may be best served by team-based practices with a broad provider mix that can provide a range of services in the office and the community.},
keywords = {},
pubstate = {published},
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}
Different staffing configurations in primary and geriatric care practices could have implications for how best to deliver services that are essential for a growing population of older adults. Using data from a 2018 survey of physicians (MDs) and nurse practitioners (NPs) working in primary and geriatric care, we assessed whether different configurations were associated with better or worse performance on a number of standard process measures indicative of comprehensive, high-quality primary care. Practices with a large concentration of MDs had the highest estimated labor costs. Practices high in NPs and physician assistants (PAs) were most common in states that grant full scope of practice to NPs. The high-NP/PA configuration was associated with a 17-percentage-point greater probability of facilitating patient visits and a 26-percentage-point greater probability of providing the full bundle of primary care services compared with the high-MD model. Team-based configurations had a 27.7-percentage-point greater probability of providing the full bundle of primary care services. The complex needs of older adults may be best served by team-based practices with a broad provider mix that can provide a range of services in the office and the community.
Barreto, Esteban A.; Guzikowski, Sophia; Michael, Carie; Carter, Jocelyn; Betancourt, Joseph R.; Tull, Andrea; Tan-McGrory, Aswita; Donelan, Karen
The role of race, ethnicity, and language in care transitions. Journal Article
In: The American journal of managed care, vol. 27, no. 7, pp. e221–e225, 2021, ISSN: 1936-2692, ().
@article{Barreto2021,
title = {The role of race, ethnicity, and language in care transitions.},
author = {Esteban A. Barreto and Sophia Guzikowski and Carie Michael and Jocelyn Carter and Joseph R. Betancourt and Andrea Tull and Aswita Tan-McGrory and Karen Donelan},
url = {https://pubmed.ncbi.nlm.nih.gov/34314122/},
doi = {10.37765/ajmc.2021.88705},
issn = {1936-2692},
year = {2021},
date = {2021-07-01},
journal = {The American journal of managed care},
volume = {27},
number = {7},
pages = {e221--e225},
abstract = {To identify areas where transition from hospital to community could be improved, with a special focus on racial, ethnic, and language differences. A cross-sectional survey administered by postal mail and bilingual telephone interviewers. Patients were randomly selected within strata by race, ethnicity, and language proficiency. A total of 224 patients (response rate: 63.5%) who had recently experienced a hospital stay completed the survey. Overall, 1 in 4 patients were alone at discharge. More than half of patients with limited English proficiency reported lack of access to medical interpreters and translated materials. We noted significant differences by race, ethnicity, and language in technology access and in patient-reported worries in the posthospital period. Hispanic or Latino patients and patients with limited English proficiency were less likely to report access to a computer and less likely to access the Patient Gateway portal. Black or African American patients were also less likely to use the Patient Gateway portal. Asian patients were more likely to be worried about getting home health services. Our findings highlight the enhanced difficulties that diverse patients may experience when transitioning from hospital to community-based settings. When considering how to best address the complex needs of diverse populations, interventions must be sensitive to the presence or absence of others, potential digital divides, and medical interpretation.},
keywords = {},
pubstate = {published},
tppubtype = {article}
}
To identify areas where transition from hospital to community could be improved, with a special focus on racial, ethnic, and language differences. A cross-sectional survey administered by postal mail and bilingual telephone interviewers. Patients were randomly selected within strata by race, ethnicity, and language proficiency. A total of 224 patients (response rate: 63.5%) who had recently experienced a hospital stay completed the survey. Overall, 1 in 4 patients were alone at discharge. More than half of patients with limited English proficiency reported lack of access to medical interpreters and translated materials. We noted significant differences by race, ethnicity, and language in technology access and in patient-reported worries in the posthospital period. Hispanic or Latino patients and patients with limited English proficiency were less likely to report access to a computer and less likely to access the Patient Gateway portal. Black or African American patients were also less likely to use the Patient Gateway portal. Asian patients were more likely to be worried about getting home health services. Our findings highlight the enhanced difficulties that diverse patients may experience when transitioning from hospital to community-based settings. When considering how to best address the complex needs of diverse populations, interventions must be sensitive to the presence or absence of others, potential digital divides, and medical interpretation.
Palamara, Kerri; Chu, Jacqueline T; Chang, Yuchiao; Yu, Liyang; Cosco, Dominique; Higgins, Stacy; Tulsky, Asher; Mourad, Ronda; Singh, Simran; Steinhauser, Karen; Donelan, Karen
Who Benefits Most? A Multisite Study of Coaching and Resident Well-being. Journal Article
In: Journal of general internal medicine, 2021, ISSN: 1525-1497, ().
@article{Palamara2021,
title = {Who Benefits Most? A Multisite Study of Coaching and Resident Well-being.},
author = {Kerri Palamara and Jacqueline T Chu and Yuchiao Chang and Liyang Yu and Dominique Cosco and Stacy Higgins and Asher Tulsky and Ronda Mourad and Simran Singh and Karen Steinhauser and Karen Donelan},
url = {https://pubmed.ncbi.nlm.nih.gov/34100238/},
doi = {10.1007/s11606-021-06903-5},
issn = {1525-1497},
year = {2021},
date = {2021-06-01},
journal = {Journal of general internal medicine},
abstract = {Coaching has been shown to improve resident well-being; however, not all benefit equally. Assess predictors of changes in resident physician well-being and burnout in a multisite implementation of a Professional Development Coaching Program. Pre- and post-implementation surveys administered to participant cohorts at implementation sites in their intern year. Effect size was calculated comparing pre- and post-intervention paired data. In total, 272 residents in their intern year at five internal medicine residency programs (Boston Medical Center, University Hospitals Cleveland Medical Center, Duke University, Emory University, Massachusetts General Hospital). Analyses included 129 residents with paired data. Interns were paired with a faculty coach trained in positive psychology and coaching skills and asked to meet quarterly with coaches. Primary outcomes included Maslach Burnout Inventory depersonalization (DP) and emotional exhaustion (EE) subscales, and the PERMA well-being scale. Key predictors included site, demographics, intolerance of uncertainty, hardiness-resilience, gratitude, and coping. Program moderators included were reflection, goal setting, and feedback. Well-being (PERMA) changed from baseline to follow-up in all participants; females showed a decline and males an increase (-1.41 vs. .8},
keywords = {},
pubstate = {published},
tppubtype = {article}
}
Coaching has been shown to improve resident well-being; however, not all benefit equally. Assess predictors of changes in resident physician well-being and burnout in a multisite implementation of a Professional Development Coaching Program. Pre- and post-implementation surveys administered to participant cohorts at implementation sites in their intern year. Effect size was calculated comparing pre- and post-intervention paired data. In total, 272 residents in their intern year at five internal medicine residency programs (Boston Medical Center, University Hospitals Cleveland Medical Center, Duke University, Emory University, Massachusetts General Hospital). Analyses included 129 residents with paired data. Interns were paired with a faculty coach trained in positive psychology and coaching skills and asked to meet quarterly with coaches. Primary outcomes included Maslach Burnout Inventory depersonalization (DP) and emotional exhaustion (EE) subscales, and the PERMA well-being scale. Key predictors included site, demographics, intolerance of uncertainty, hardiness-resilience, gratitude, and coping. Program moderators included were reflection, goal setting, and feedback. Well-being (PERMA) changed from baseline to follow-up in all participants; females showed a decline and males an increase (-1.41 vs. .8
Carter, Jocelyn; Hassan, Susan; Walton, Anne; Yu, Liyang; Donelan, Karen; Thorndike, Anne N
Ëffect of Community Health Workers on 30-Day Hospital Readmissions in an Accountable Care Organization Population: A Randomized Clinical Trial." Journal Article
In: JAMA network open, vol. 4, pp. e2110936, 2021, ISSN: 2574-3805, ().
@article{Carter2021,
title = {\"{E}ffect of Community Health Workers on 30-Day Hospital Readmissions in an Accountable Care Organization Population: A Randomized Clinical Trial."},
author = {Jocelyn Carter and Susan Hassan and Anne Walton and Liyang Yu and Karen Donelan and Anne N Thorndike},
url = {https://pubmed.ncbi.nlm.nih.gov/34014324/},
doi = {10.1001/jamanetworkopen.2021.10936},
issn = {2574-3805},
year = {2021},
date = {2021-05-01},
journal = {JAMA network open},
volume = {4},
pages = {e2110936},
abstract = {Value-based care within accountable care organizations (ACOs) has magnified the importance of reducing preventable hospital readmissions. Community health worker (CHW) interventions may address patients' unmet psychosocial and clinical care needs but have been underused in inpatient and postdischarge care. To determine if pairing hospitalized patients with ACO insurance with CHWs would reduce 30-day readmission rates. This randomized clinical trial was conducted in 6 general medicine hospital units within 1 academic medical center in Boston, Massachusetts. Participants included adults hospitalized from April 1, 2017, through March 31, 2019, who had ACO insurance and were at risk for 30-day readmission based on a hospital readmission algorithm. The main inclusion criterion was frequency of prior nonelective hospitalizations (≥2 in the past 3 months or ≥3 in the 12 months prior to enrollment). Data were analyzed from February 1, 2018, through March 3, 2021. CHWs met with intervention participants prior to discharge and maintained contact for 30 days postdischarge to assist participants with clinical access and social resources via telephone calls, text messages, and field visits. CHWs additionally provided psychosocial support and health coaching, using motivational interviewing, goal-setting, and other behavioral strategies. The control group received usual care, which included routine care from primary care clinics and any outpatient referrals made by hospital case management or social work at the time of discharge. The primary outcome was 30-day hospital readmissions. Secondary outcomes included 30-day missed primary care physician or specialty appointments. A total of 573 participants were enrolled, and 550 participants (mean [SD] age, 70.1 [15.7] years; 266 [48.4%] women) were included in analysis, with 277 participants randomized to the intervention group and 273 participants randomized to the control group. At baseline, participants had a mean (SD) of 3 (0.8) hospitalizations in the prior 12 months. There were 432 participants (78.5%) discharged home and 127 participants (23.1%) discharged to a short rehabilitation stay prior to returning home. Compared with participants in the control group, participants in the intervention group were less likely to be readmitted within 30 days (odds ratio [OR], 0.44; 95% CI, 0.28-0.90) and to miss clinic appointments within 30 days (OR, 0.56; 95% CI, 0.38-0.81). A post hoc subgroup analysis showed that compared with control participants, intervention participants discharged to rehabilitation had a reduction in readmissions (OR, 0.09; 95% CI, 0.03-0.31), but there was no significant reduction for those discharged home (OR, 0.68; 95% CI, 0.41-1.12). This randomized clinical trial found that pairing ACO-insured inpatient adults with CHWs reduced readmissions and missed outpatient visits 30 days postdischarge. The effect was significant for those discharged to short-term rehabilitation but not for those discharged home. ClinicalTrials.gov Identifier: NCT03085264.},
keywords = {},
pubstate = {published},
tppubtype = {article}
}
Value-based care within accountable care organizations (ACOs) has magnified the importance of reducing preventable hospital readmissions. Community health worker (CHW) interventions may address patients' unmet psychosocial and clinical care needs but have been underused in inpatient and postdischarge care. To determine if pairing hospitalized patients with ACO insurance with CHWs would reduce 30-day readmission rates. This randomized clinical trial was conducted in 6 general medicine hospital units within 1 academic medical center in Boston, Massachusetts. Participants included adults hospitalized from April 1, 2017, through March 31, 2019, who had ACO insurance and were at risk for 30-day readmission based on a hospital readmission algorithm. The main inclusion criterion was frequency of prior nonelective hospitalizations (≥2 in the past 3 months or ≥3 in the 12 months prior to enrollment). Data were analyzed from February 1, 2018, through March 3, 2021. CHWs met with intervention participants prior to discharge and maintained contact for 30 days postdischarge to assist participants with clinical access and social resources via telephone calls, text messages, and field visits. CHWs additionally provided psychosocial support and health coaching, using motivational interviewing, goal-setting, and other behavioral strategies. The control group received usual care, which included routine care from primary care clinics and any outpatient referrals made by hospital case management or social work at the time of discharge. The primary outcome was 30-day hospital readmissions. Secondary outcomes included 30-day missed primary care physician or specialty appointments. A total of 573 participants were enrolled, and 550 participants (mean [SD] age, 70.1 [15.7] years; 266 [48.4%] women) were included in analysis, with 277 participants randomized to the intervention group and 273 participants randomized to the control group. At baseline, participants had a mean (SD) of 3 (0.8) hospitalizations in the prior 12 months. There were 432 participants (78.5%) discharged home and 127 participants (23.1%) discharged to a short rehabilitation stay prior to returning home. Compared with participants in the control group, participants in the intervention group were less likely to be readmitted within 30 days (odds ratio [OR], 0.44; 95% CI, 0.28-0.90) and to miss clinic appointments within 30 days (OR, 0.56; 95% CI, 0.38-0.81). A post hoc subgroup analysis showed that compared with control participants, intervention participants discharged to rehabilitation had a reduction in readmissions (OR, 0.09; 95% CI, 0.03-0.31), but there was no significant reduction for those discharged home (OR, 0.68; 95% CI, 0.41-1.12). This randomized clinical trial found that pairing ACO-insured inpatient adults with CHWs reduced readmissions and missed outpatient visits 30 days postdischarge. The effect was significant for those discharged to short-term rehabilitation but not for those discharged home. ClinicalTrials.gov Identifier: NCT03085264.
Larsen, Dana; Chu, Jacqueline T; Yu, Liyang; Chang, Yuchiao; Donelan, Karen; Palamara, Kerri
Correlating Burnout and Well-being in a Multisite Study of Internal Medicine Residents and Faculty. Journal Article
In: Journal of general internal medicine, vol. 36, no. 5, pp. 1422-1426, 2021, ISSN: 1525-1497, ().
@article{Larsen2021,
title = {Correlating Burnout and Well-being in a Multisite Study of Internal Medicine Residents and Faculty.},
author = {Dana Larsen and Jacqueline T Chu and Liyang Yu and Yuchiao Chang and Karen Donelan and Kerri Palamara},
url = {https://pubmed.ncbi.nlm.nih.gov/33674923/},
doi = {10.1007/s11606-021-06653-4},
issn = {1525-1497},
year = {2021},
date = {2021-05-01},
journal = {Journal of general internal medicine},
volume = {36},
number = {5},
pages = {1422-1426},
keywords = {},
pubstate = {published},
tppubtype = {article}
}
Santoro, Stephanie L; Donelan, Karen; Haugen, Kelsey; Oreskovic, Nicolas M; Torres, Amy; Skotko, Brian G
Transition to virtual clinic: Experience in a multidisciplinary clinic for Down syndrome. Journal Article
In: American journal of medical genetics. Part C, Seminars in medical genetics, vol. 187, pp. 70–82, 2021, ISSN: 1552-4876, ().
@article{Santoro2021,
title = {Transition to virtual clinic: Experience in a multidisciplinary clinic for Down syndrome.},
author = {Stephanie L Santoro and Karen Donelan and Kelsey Haugen and Nicolas M Oreskovic and Amy Torres and Brian G Skotko},
url = {https://pubmed.ncbi.nlm.nih.gov/33385186/},
doi = {10.1002/ajmg.c.31876},
issn = {1552-4876},
year = {2021},
date = {2021-03-01},
journal = {American journal of medical genetics. Part C, Seminars in medical genetics},
volume = {187},
pages = {70--82},
abstract = {The COVID-19 pandemic necessitated a rapid transition from in-person office visits to virtual visits in the Down syndrome specialty program at Massachusetts General Hospital (MGH DSP). We describe the clinic transition to virtual visits in April 2020 and reflect on our six-month experience in virtual visits. Clinic metrics were tracked. Electronic survey responses were collected from caregivers attending virtual visits. Input from the MGH DSP team was collected. From April to September 2020, we maintained patient volume (45 visits per month) and overall satisfaction score (6.7 out of 7) following a sudden, unanticipated transition to virtual visits. Survey of 17 caregivers attending virtual visits found that most were equipped with technology, had access to a private location, and most were able to access visit without any limitations. Caregivers appreciated the convenience of virtual visits but sometimes missed the personal connection of an in-person visit. Overall, though, virtual visits were frequently viewed as no different than office visits. Team members identified benefits and challenges of virtual visits, as well as lessons learned from this transition. We were able to maintain multidisciplinary, specialty care with optimal caregiver feedback and sustained number of patient visits.},
keywords = {},
pubstate = {published},
tppubtype = {article}
}
The COVID-19 pandemic necessitated a rapid transition from in-person office visits to virtual visits in the Down syndrome specialty program at Massachusetts General Hospital (MGH DSP). We describe the clinic transition to virtual visits in April 2020 and reflect on our six-month experience in virtual visits. Clinic metrics were tracked. Electronic survey responses were collected from caregivers attending virtual visits. Input from the MGH DSP team was collected. From April to September 2020, we maintained patient volume (45 visits per month) and overall satisfaction score (6.7 out of 7) following a sudden, unanticipated transition to virtual visits. Survey of 17 caregivers attending virtual visits found that most were equipped with technology, had access to a private location, and most were able to access visit without any limitations. Caregivers appreciated the convenience of virtual visits but sometimes missed the personal connection of an in-person visit. Overall, though, virtual visits were frequently viewed as no different than office visits. Team members identified benefits and challenges of virtual visits, as well as lessons learned from this transition. We were able to maintain multidisciplinary, specialty care with optimal caregiver feedback and sustained number of patient visits.
Iezzoni, Lisa I; Rao, Sowmya R; Ressalam, Julie; Bolcic-Jankovic, Dragana; Agaronnik, Nicole D; Donelan, Karen; Lagu, Tara; Campbell, Eric G
Physicians' Perceptions Of People With Disability And Their Health Care. Journal Article
In: Health affairs (Project Hope), vol. 40, no. 2, pp. 297–306, 2021, ISSN: 1544-5208, ().
@article{Iezzoni2021,
title = {Physicians' Perceptions Of People With Disability And Their Health Care.},
author = {Lisa I Iezzoni and Sowmya R Rao and Julie Ressalam and Dragana Bolcic-Jankovic and Nicole D Agaronnik and Karen Donelan and Tara Lagu and Eric G Campbell},
url = {https://pubmed.ncbi.nlm.nih.gov/33523739/},
doi = {10.1377/hlthaff.2020.01452},
issn = {1544-5208},
year = {2021},
date = {2021-02-01},
journal = {Health affairs (Project Hope)},
volume = {40},
number = {2},
pages = {297--306},
abstract = {More than sixty-one million Americans have disabilities, and increasing evidence documents that they experience health care disparities. Although many factors likely contribute to these disparities, one little-studied but potential cause involves physicians' perceptions of people with disability. In our survey of 714 practicing US physicians nationwide, 82.4 percent reported that people with significant disability have worse quality of life than nondisabled people. Only 40.7 percent of physicians were very confident about their ability to provide the same quality of care to patients with disability, just 56.5 percent strongly agreed that they welcomed patients with disability into their practices, and 18.1 percent strongly agreed that the health care system often treats these patients unfairly. More than thirty years after the Americans with Disabilities Act of 1990 was enacted, these findings about physicians' perceptions of this population raise questions about ensuring equitable care to people with disability. Potentially biased views among physicians could contribute to persistent health care disparities affecting people with disability.},
keywords = {},
pubstate = {published},
tppubtype = {article}
}
More than sixty-one million Americans have disabilities, and increasing evidence documents that they experience health care disparities. Although many factors likely contribute to these disparities, one little-studied but potential cause involves physicians' perceptions of people with disability. In our survey of 714 practicing US physicians nationwide, 82.4 percent reported that people with significant disability have worse quality of life than nondisabled people. Only 40.7 percent of physicians were very confident about their ability to provide the same quality of care to patients with disability, just 56.5 percent strongly agreed that they welcomed patients with disability into their practices, and 18.1 percent strongly agreed that the health care system often treats these patients unfairly. More than thirty years after the Americans with Disabilities Act of 1990 was enacted, these findings about physicians' perceptions of this population raise questions about ensuring equitable care to people with disability. Potentially biased views among physicians could contribute to persistent health care disparities affecting people with disability.
Park, Elyse R; Sylvia, Louisa G; Streck, Joanna M; Luberto, Christina M; Stanton, Amelia M; Perez, Giselle K; Baim, Margaret; Bliss, Cayley C; Convery, Mary Susan; Crute, Sydney; Denninger, John W; Donelan, Karen; Dossett, Michelle L; Fava, Maurizio; Fredriksson, Stacie; Fricchione, Gregory; George, Nevita; Hall, Daniel L; Hart, Betsy Remington; Herman, John; Hirschberg, April; Holt, Daphne; Looby, Sara E; Malloy, Laura; Meek, Jocelyn; Mehta, Darshan H; Millstein, Rachel A; Mizrach, Helen; Rosa, Katherine; Slawsby, Ellen; Stupinski, A Clare; Traeger, Lara; Vanderkruik, Rachel; Vogeli, Christine; Wilhelm, Sabine
In: General hospital psychiatry, vol. 68, pp. 111-112, 2021, ISSN: 1873-7714, ().
@article{Park2020,
title = {Launching a resiliency group program to assist frontline clinicians in meeting the challenges of the COVID-19 pandemic: Results of a hospital-based systems trial.},
author = {Elyse R Park and Louisa G Sylvia and Joanna M Streck and Christina M Luberto and Amelia M Stanton and Giselle K Perez and Margaret Baim and Cayley C Bliss and Mary Susan Convery and Sydney Crute and John W Denninger and Karen Donelan and Michelle L Dossett and Maurizio Fava and Stacie Fredriksson and Gregory Fricchione and Nevita George and Daniel L Hall and Betsy Remington Hart and John Herman and April Hirschberg and Daphne Holt and Sara E Looby and Laura Malloy and Jocelyn Meek and Darshan H Mehta and Rachel A Millstein and Helen Mizrach and Katherine Rosa and Ellen Slawsby and A Clare Stupinski and Lara Traeger and Rachel Vanderkruik and Christine Vogeli and Sabine Wilhelm},
url = {https://pubmed.ncbi.nlm.nih.gov/33229013/},
doi = {10.1016/j.genhosppsych.2020.10.005},
issn = {1873-7714},
year = {2021},
date = {2021-01-01},
journal = {General hospital psychiatry},
volume = {68},
pages = {111-112},
keywords = {},
pubstate = {published},
tppubtype = {article}
}
Chung, Jeanhee; Donelan, Karen; Macklin, Eric A.; Schwartz, Alison; Elsharkawi, Ibrahim; Torres, Amy; Hsieh, Yichuan Grace; Parker, Holly; Lorenz, Stephen; Patsiogiannis, Vasiliki; Santoro, Stephanie L.; Wylie, Mark; Clarke, Lloyd; Estey, Greg; Baker, Sandra; Bauer, Patricia E.; Bull, Marilyn; Chicoine, Brian; Cullen, Sarah; Frey-Vogel, Ariel; Gallagher, Maureen; Hasan, Reem; Lamb, Ashley; Majewski, Lisa; Mast, Jawanda; Riddell, Travis; Sepucha, Karen; Skavlem, Melissa; Skotko, Brian G.
A randomized controlled trial of an online health tool about Down syndrome. Journal Article
In: Genetics in medicine : official journal of the American College of Medical Genetics, vol. 23, no. 1, pp. 163-173, 2021, ISSN: 1530-0366, ().
@article{Chung2020,
title = {A randomized controlled trial of an online health tool about Down syndrome.},
author = {Jeanhee Chung and Karen Donelan and Eric A. Macklin and Alison Schwartz and Ibrahim Elsharkawi and Amy Torres and Yichuan Grace Hsieh and Holly Parker and Stephen Lorenz and Vasiliki Patsiogiannis and Stephanie L. Santoro and Mark Wylie and Lloyd Clarke and Greg Estey and Sandra Baker and Patricia E. Bauer and Marilyn Bull and Brian Chicoine and Sarah Cullen and Ariel Frey-Vogel and Maureen Gallagher and Reem Hasan and Ashley Lamb and Lisa Majewski and Jawanda Mast and Travis Riddell and Karen Sepucha and Melissa Skavlem and Brian G. Skotko},
url = {https://pubmed.ncbi.nlm.nih.gov/32879436/},
doi = {10.1038/s41436-020-00952-7},
issn = {1530-0366},
year = {2021},
date = {2021-01-01},
urldate = {2021-01-01},
journal = {Genetics in medicine : official journal of the American College of Medical Genetics},
volume = {23},
number = {1},
pages = {163-173},
abstract = {We sought to determine if a novel online health tool, called Down Syndrome Clinic to You (DSC2U), could improve adherence to national Down syndrome (DS) guidelines. We also sought to determine if primary care providers (PCPs) and caregivers are satisfied with this personalized online health tool. In a national, randomized controlled trial of 230 caregivers who had children or dependents with DS without access to a DS specialist, 117 were randomized to receive DSC2U and 113 to receive usual care. The primary outcome was adherence to five health evaluations indicated by national guidelines for DS. DSC2U is completed electronically, in all mobile settings, by caregivers at home. The outputs-personalized checklists-are used during annual wellness visits with the patient's PCP. A total of 213 participants completed a 7-month follow-up evaluation. In the intention-to-treat analysis, the intervention group had a 1.6-fold increase in the number of indicated evaluations that were recommended by the primary care provider or completed compared with controls. Both caregivers and PCPs reported high levels of satisfaction with DSC2U. DSC2U improved adherence to the national DS health-care guidelines with a novel modality that was highly valued by both caregivers and PCPs.},
keywords = {},
pubstate = {published},
tppubtype = {article}
}
We sought to determine if a novel online health tool, called Down Syndrome Clinic to You (DSC2U), could improve adherence to national Down syndrome (DS) guidelines. We also sought to determine if primary care providers (PCPs) and caregivers are satisfied with this personalized online health tool. In a national, randomized controlled trial of 230 caregivers who had children or dependents with DS without access to a DS specialist, 117 were randomized to receive DSC2U and 113 to receive usual care. The primary outcome was adherence to five health evaluations indicated by national guidelines for DS. DSC2U is completed electronically, in all mobile settings, by caregivers at home. The outputs-personalized checklists-are used during annual wellness visits with the patient's PCP. A total of 213 participants completed a 7-month follow-up evaluation. In the intention-to-treat analysis, the intervention group had a 1.6-fold increase in the number of indicated evaluations that were recommended by the primary care provider or completed compared with controls. Both caregivers and PCPs reported high levels of satisfaction with DSC2U. DSC2U improved adherence to the national DS health-care guidelines with a novel modality that was highly valued by both caregivers and PCPs.